Dysautonomia International
Conference Poster
Thank you for stopping by at the DI conference. Find the poster with our preliminary results of the hEDS/HSD and Rehabilitation study with references below.
Meet OT Emily
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References
Palomo-Toucedo, I. C., Leon-Larios, F., Reina-Bueno, M., Vazquez-Bautista, M. C., Munuera-Martinez, P. V., & Dominguez-Maldonado, G. (2020). Psychosocial influence of ehlers-danlos syndrome in daily life of patients: A qualitative study.
International Journal of Environmental Research and Public Health, 17, 1-14. doi:10.3390/ijerph17176425
Camerota, F., Mariani, R., Cordiano, G., Di Trani, M., Lodato, V., Ferraris, A., Pasquini, M., & Celletti, C. (2023). The language of pain in the hypermobile ehlers-danlos syndrome: Metaphors as a key to understanding the experience of pain and as a rehabilitation tool. Brain Sciences, 13(7), 1042. https://doi.org/10.3390/brainsci13071042
Rombaut, L., Malfait, F., De Wandele, I., Cools, A., Thijs, Y., De Paepe, A., & Calders, P. (2011). Medication, surgery, and physiotherapy among patients with the hypermobility type of ehlers-danlos syndrome. Archives of Physical Medicine and Rehabilitation, 92, 1106-1112. DOI: 10.1016/j.apmr. 2011.01.016.
Simmonds, J., Cairns, M., Ninis, N., Lever, W., Aziz, Q., & Hakim, A. (2015). Attitudes, beliefs, and behaviours towards exercise amongst individuals with joint hypermobility syndrome/ehlers danlos syndrome-hypermobility type. Physiotherapy, 101(Suppl. 1), 1238-1642. http://dx.doi.org/10.1016/j.physio.2015.03.1349
Sokol, O. E., Biggs, E. E., Berger, A. S., Simons, L. E., & Bhandari, R. P. (2025). The relationship between fatigue, pain interference, pain-related distress, and avoidance in pediatric hypermobile ehlers-danlos syndrome. Children (Basel, Switzerland), 12(2), 170. https://doi.org/10.3390/children12020170
Wang, Y. T., Jahani, S., Morel-Swols, D., Kapely, A., Rose, A., & Forghani, I. (2024). Patient experiences of receiving a diagnosis of hypermobile Ehlers-Danlos syndrome. American Journal of Medical Genetics, 194(8). https://doi.org/10.1002/ajmg.a.63613
Yahya, A. S., & Khawaja, S. (2020). Psychiatric disorder in postural orthostatic tachycardia syndrome and ehlers-danlos syndrome-hypermobility type. The Primary Care Companion for CNS Disorders, 22(6). https://doi-org.libproxy.nau.edu/10.4088/PCC.20nr02644
Yew, K. S., Kamps-Schmitt, K. A., & Borge, R. (2021). Hypermobile ehlers-danlos syndrome and hypermobility spectrum disorders. American Family Physician, 103(8), 481–492.